I put a Facebook page up for Darryl's Kidney tonight. But there are some other wonderful websites I'd love for you to know about. Seems like a find a new one every day.
Tonight I found the Renal Support Network, which is kind of a community for people affected by kidney disease.
Another wonderful website specifically about kidney transplants is the KidneyLink. It has a lot of great information for kidney donors and recipients about the whole transplant process. I love the Living Kidney Donor Network, which also has a lot of information for both donors and recipients. It was created by Harvey Mysel, who has had 2 transplants and who does a phenomenal job helping recipients let people know of their situation. We listened to his webinar earlier this week, full of statistics and ideas.
The National Kidney Registry is another amazing organization started out of necessity - by Garet Hil, whose 10 year old daughter needed a kidney. Their work enables paired kidney donations and kidney chains, which has radically transformed the whole process. Now, you don't have to be an exact match for the person you want to donate to. If you are willing but don't have a compatible blood type, you can be matched with another pair so that it will work.
But perhaps the most inspiring site that I have found is an interactive website from the NY Times called A Record Chain of Kidney Transplants. One good Samaritan set off a chain that saved the lives of 30 people. Truly amazing.
I'll post more great links as I find them.
No comments:
Post a Comment